New online resource enables researchers to access and share data from health studies

The HeSANDA platform is a catalogue of research metadata from clinical trials conducted across Australia that enables researchers to access and share data from health studies.

Led by the Australian Research Data Commons (ARDC), the project has involved over 72 research institutes from across Australia, including the fourteen Cancer Cooperative trials Groups. The ALLG has provided to the platform the metadata from 32 practice-changing trials that our Group has conducted over the past 20 years.

The metadata is searchable to allow researchers to identify and request access to datasets to conduct additional research projects, including meta-analysis of studies, supplemental analysis, to explore research questions that were not analysed in the original trial and data discovery, to assist in developing an idea for a new clinical trial.

Learn more here about the ARDC and the HeSANDA platform that provides a national infrastructure for health research data sharing and collaboration. You can also read a Case Study here.

The HeSANDA project launched on 30 June, 2023. You can access HeSANDA via the Datasets tab under Clinical Trials & Research on the allg.org.au website here: https://www.allg.org.au/datasets

About the ALLG

Learn about the ALLG’s five decades of impact in clinical trials for blood cancer here.

For five decades now, our cooperative group, the ALLG has been bringing together blood cancer experts from across Australia and New Zealand to volunteer their time and run clinical trials to change the way blood cancers – leukaemia, lymphoma and myeloma, – are treated. Our not-for-profit has contributed to what are now standard treatments for some blood cancers and continues to drive change for greater access to new and more effective therapies for patients.

If you are interested in participating in a clinical trial, speak with you doctor and visit ALLG’s Frequently Asked Questions about participating in a clinical trial and learn more here about getting involved in clinical trial research.

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Did you know that the ALLG is registered charity?

100% of donations go to our clinical trials’ program. Find out some of the ways you can support this mission for better treatments, better lives for patients with blood cancer. Learn more here.